Well I have a rare condition. I was going to a specialist and investigated all my options online. I was also given a booklet from the main body that looks after these types of conditions. I now just use my GP as there is nothing that can be done. I do have a choice of injections for the rest of my life but the side effects are worse than the chemo tablets. It is just the way it is . Maybe they will come up with other choices but not holding my breath. Of course there could be a miracle.I didn't have a choice so I changed doctors, but I want the previous doctor and I'll tell her I want the new med that I'm on. .